Covid Reactive Autoimmune Pathology

In general:

Autoimmune and Autoinflammatory Connective Tissue Disorders Following COVID-19

High risk of autoimmune diseases after COVID-19

Patients with COVID-19 have 43% increased risk for new-onset autoimmune diseases

Autoimmunity is a hallmark of post-COVID syndrome

Inflammatory Bowel Disease (of which Crohn’s is one):

SARS-CoV-2 infection as a potential trigger factor for de novo occurrence of inflammatory bowel disease

Crohn’s Disease (my personal form of CRAP):

COVID-19 as a Trigger for De Novo Crohn’s Disease

Psoriasis (my other personal form of CRAP):

New Onset and Exacerbations of Psoriasis Following COVID-19 Vaccines: A Systematic Review

New-onset and flares of psoriasis after COVID-19 infection or vaccination successfully treated with biologics: a case series

And Eczema, which is not exactly an autoimmune condition but is allegedly related, and which in my case also got worse after the vaccines and further worse after Covid, but hell maybe it’s because I’m just getting old:

Large cohort study shows increased risk of developing atopic dermatitis after COVID-19 disease

My point is, CRAP is a great acronym for this, and as far as search engines are concerned I coined it. You’re welcome!

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My Disciplinarian

“I admire your discipline,” said a friend, referring to my extremely strict, narrow Crohn’s diet. But there’s nothing to admire, because it’s not SELF discipline. It’s being subject to a brutal, sadistic “disciplinarian” that punishes the hell out of me if I make one false move. If you had this taskmaster you’d be “disciplined” too.

(Not a $150 Drawing, but looks like one.)

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Little Miss Food

Sometimes I miss food.

By food I mean Indian food, Thai food, Mexican food, salsa fresca, salads, pizza, pasta, and my homemade bread and soups: tomato, lentil-kale, vegetarian chili. Tortilla chips, potatoes with skins on, sesame seeds, nuts, herbs, and Numb Oil Tofu from Golden Harbour.

I miss eating with others. This genuinely lovely article by Brandon Showalter felt like a knife in my heart:

“Why have I been doing this, you ask? And how do I do it in light of such deep and profound differences among us? It’s actually not that complicated. As my past and present housemates can attest, I’m an unabashed foodie, I have a knack for hospitality, and extending it is an expression of normal life. I may as well give away what I love. And who doesn’t love to eat?”

I love to eat, I just can’t.

A month and a half ago I drastically restricted my diet. Fiber was out; fish was in. That was harder than it sounds, because as a vegetarian (and occasional vegan) since age 17, I prided myself on nutritious, whole-foods, hippie-style cooking. I would eat seafood a few times a year, but only away from home; I did not store or prepare it in my own kitchen. Same with eggs: an occasional restaurant treat, not on my shopping list or in my fridge. With my Crohn’s diagnosis I surrendered my dietary ideals, overcame my squeamishness, rose above my principles, and started making seared Ahi tuna steaks and scrambled eggs. I now consume about 3 times more lactose-free milk than I used to, and zero beans and lentils. The exquisite batch of vegetarian chili I made in November languishes in my freezer. I should give it away already but that would be yet another admission of defeat.

Friends pity me now, which I enjoy. But the fact is, many years before I developed Crohn’s, I would sometimes I lose my appetite for weeks at a time. Occasionally I have eschewed eating due to utter boredom and frustration. Even without any dietary restrictions (except my refusal to eat birds and mammals, which would have put me at a disadvantage at Brandon’s house anyway) food has, over the years, lost its brilliance. I have longed to recapture the thrill of my early 20’s, when the world was full of new flavors and cuisines, and every California burrito was a revelation. Age has dulled my tastebuds, but more than that, experience: I have tasted damn near everything already, many times. A memory of food usually exceeds the real thing, so eating is often tinged with disappointment: that tom kha phak is good, but not as good as that place in San Francisco in the 90’s…

A capacity for enjoying food is a blessing and shouldn’t be taken for granted.

On the brighter side, Crohn’s forced me to discover juicing. After several weeks without a salad I despaired of ever eating anything fresh again. Then I learned that a quality juicer would remove the insoluble fiber from just about any produce item. Some other Crohn’s patients wrote about doing well with fresh juices, so I ordered an entry-level masticating juicer off Amazon (since upgraded), bought a fridge’s worth of fruits and vegetables, and set off on my first culinary adventure in decades. Not only was I getting quality nutrients that didn’t make me crap my pants, I was also discovering new flavors and reawakening an interest in food — or more accurately, drink.

I can’t go out to eat these days, so I try to lure friends to my house for juice. We can’t break bread, but we can sip pineapple-ginger.

Woman does not live by juice alone (unless she’s on a “juice fast” but I’ve lost enough weight already thank you) so I continue to ingest white rice and peeled potatoes and fish and cheddar cheese (not at the same time! that would be gross) which isn’t really that bad. A person can get used to anything, and after a month-and-a-half this is just how I eat now. It’s pretty boring, but then so was almost everything, before.

I am missing much….

But really, I’m not missing much. 

 

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