Is There A Doctor In The House?

#ff0000;">Note: updated below
I NEED HELP. I have an orange-sized fibroid in my cervix, among other problems. The local hospital system is dysfunctional and corrupt – doctors don’t communicate with each other, or with patients (it is, however, one of the most PROFITABLE systems in the country! Isn’t that nice). My so-called “primary care physician” hasn’t seen me in 3 years, though not for lack of trying on my part. I visited the emergency room in great pain last year and since then have gotten bumped from specialist to specialist, and then dropped – it took 4 months to get a referral from the useless rheumatologist for the gynecologist, because someone somewhere dropped the ball and didn’t feel like it was important. Surgery that was supposed to happen this month or next, now won’t even start to be scheduled until July. Maybe. Every time Carle says they’ll do something by a certain time, they don’t – like I said, they took 4 months for a simple referral (and I had to get on their case to do anything about it at all). So even if I absolutely knew surgery was what I needed, there is an enormous trust problem at this point. Do I want these corrupt clowns cutting me?

A doctor in my family recommended someone at Loyola Medical Center who looked promising. So I called, and while they accept Medicaid, they don’t accept Medicaid managed by Meridian, which is what I have. So I called Illinois Medicaid and asked if I could switch to Molina, and they said no, I’m locked in until April of next year. So I called Meridian, who put me on hold for half an hour and then gave me numbers of nearby medical establishments which aren’t Carle. One of them was a disconnected number, the other, Kirby Med Center in Monticello, has no gynecologists at all. I called an affiliated gynecologist in Peoria, but his office is booked until at least July – and that would just be for an initial appointment.

What I REALLY want is a doctor that actually pays attention and can help me figure out what I should do. I won’t get that through my local med system. I probably won’t get that anywhere. But here’s my last-ditch effort before I resign myself to a life of pain and permanent celibacy (I can’t have sex without getting violently ill; celibacy is how I’ve been managing at all):

Are there any gynecologists among my fans? Any? I will travel to your state. I just want someone who will actually pay attention to my case. I am desperate.

#ff0000;">Update 5-18: Due to help found through my cry of despair here & on fecebook, I have an appointment Monday with a gynecologist at SIU Med Center in Springfield IL. I was advised that teaching hospitals are eager for patients like me, and so far that seems to be the case. I called this morning, they were very helpful, and called back within 4 hours with said expedited consult appointment.

Then all I had to do was get my records released from Carle. Carle doesn’t accept emails for this (“they take too long,” they said on the phone). You have to visit their new vortex-of-evil administrative hell-plex on Staley road at Curtis, on the outside of town. Fortunately, SpecialManFriend(tm) was kind enough to take me there. I filled out the form, talked to the clerk, and came back after lunch. “Here are your records!” they said, handing me a big envelope. I almost walked off with it, but then decided to read through them first. Good thing, too – they’d neglected the most important, recent, and pertinent records of my MRI and ultrasound. They also neglected to include images, which I specifically requested. I politely asked for these things and they said, “oh, sorry, we’ll print those out now,” and “oh, ok, we’ll burn you a disc.” I’d be disgusted but I’m feeling too hopeful about getting a new doctor in a completely new, totally non-Carle system.

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The TERFening: attempting to document a convoluted online silencing campaign

Background

A few years ago, when I shared this article about Caitlyn Jenner and another one  about Rachel Dolezal, many angry liberal friends called me “transphobic,” and told me to “educate myself.” They apparently didn’t know I had spent many years deeply involved in various queer scenes in San Francisco, and had trans friends, and was gender dysphoric myself (it resolved in my mid-20’s, which is not unusual.) Since I couldn’t “educate myself” much more on trans people and queer theory, I considered what I really hadn’t educated myself about: radical feminism. Like everyone else, I had been denouncing “TERF“s without reading anything they’d written. So I started reading, and quickly realized I was a gender-critical radical feminist. (If you’re wondering why, I suggest you “educate yourself” about radical feminism. This video is a good place to start.)

Saying you’re a gender-critical radical feminist in public is like saying, “I’m a witch! Burn me!” So I spent about a year and a half in seething, cowed silence. But finally, on February 25, 2017, I “came out.”

The TERFening

In late February I noticed my liberal friends were sharing this “meme”:

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So I posted this on Facebook (which I now call fecebook):

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You can try to read all 1000+ comments here, although fecebook organizes them so poorly they’re hard to navigate.

Now it gets rather convoluted. Some of the comments have been documented anonymously here, along with annotation. I am “user J.”

Continue reading “The TERFening: attempting to document a convoluted online silencing campaign”

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Youtube’s Content ID abuse is out of control

Today I received not one but two fraudulent copyright claims on my Free and Copyleft work (instances of Sita Sings the Blues and All Creative Work is Derivative). I’ve also received fraudulent claims on Copying Is Not Theft, as have others who have re-posted it and translations.

This is why I’m looking into Chinese video hosting. When China starts looking like a Free Speech haven, something is really wrong with the United States.

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Authoritarian update

crossposted from Mimi & Eunice

Authoritarian

I’m re-posting this cartoon today because the US Department of Homeland Security seized more than 70 web sites over the weekend (while sites like arstechnica.com and techdirt were on vacation, and the mainstream media were devoted to stories about holiday shopping). Democrats: unless you stand up to stop this NOW, I am never voting for you again.

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Mimi and Eunice: the challenge continues

So I missed my whole trip to California due to a badly-timed cold. Which means I have lots of time on my hands to bang my head into the wall that is the Mimi & Eunice web site.

I hired a developer who started building a beautiful new system in Ruby on Rails, only to discover that my web host, Media Temple, has a relatively wonky and outdated Ruby setup. That led the site to disappear for a few days. It’s potentially a really nice system (though it still has some kinks in it), but I may have to switch web hosts if I want to rely on it.

So I started uploading the strips in plain old WordPress, which is excellent in all ways but one some: the images don’t show up in all RSS feeders, they don’t show up in Facebook, and I can’t find a way to generate simple embed code for them. What am I talking about? Behold what I want, as shown on the fine comics site qwantz:

See that code it automatically generates that lets you embed any comic? I spent a day searching for a wordpress plugin that does that, and still can’t find one. Help?

And I don’t know why my Mimi & Eunice comics don’t show up in the RSS Feed in Firefox, but they do in other browsers. I already did this, and installed the AbsoluteRSS plugin. But I still can’t see the images in Firefox. Help?

I just want Mimi & Eunice to be as easily shared as possible. Help appreciated, but please don’t suggest ComicPress. Been there, done that, it has a lot of problems. Also my budget is exhausted of $$ to pay for consultants, since the Ruby on Rails project consumed it all. The nice thing about the simple WordPress setup is that each comic displays at a small size (640 pixels wide) but links to a high-res (2400 pixels wide) image suitable for printing. That’s important to me, because I want to encourage all kinds of sharing, including paper publishing. The current site has all the features I want except image embedding. Please tell me there’s a solution. Thanks. I love you.

Update: Brett Thompson has made an embed code generator for Mimi & Eunice! It looks big and text-y today but Brett says he will spruce up its appearance tomorrow. But you can start embedding Mimi & Eunice comics RIGHT NOW!

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An Open Letter to Lincoln Center

Dear Lincoln Center,

On Friday, May 28, I attended a NY Philharmonic performance of Ligeti’s Le Grand Macabre.

All patrons were required to pass through long “security” lines and have our bags searched by guards. Those carrying cameras were forbidden from entering the auditorium and ordered to check their bags in an even longer line.

New Yorkers tolerate “security” searches because they remember the falling of the World Trade Center on September 11, 2001. They are willing to be treated as suspected terrorists and “guilty until proven innocent” criminals because they fear for their physical safety. They rationalize Lincoln Center’s “security” policy because they don’t want anyone bringing a bomb or weapon into a large closed space containing thousands of vulnerable people.

But cameras are not a security threat. In fact, citizen cameras increase security, and their forced removal puts us in greater danger. In the unlikely event a terrorist were able to bring a weapon into the auditorium, citizens carrying cameras would document it. Presumably Lincoln Center has its own “security” cameras, but no fixed, closed surveillance system is as effective as citizens.

I don’t trust Lincoln Center’s “security” to protect me or anyone; they are incompetent at actual security, effective only at treating patrons like suspected criminals, creating long tedious lines, and converting what was once an uplifting cultural experience into something resembling a visit to an airport. I can visit the airport for free, but being treated like a criminal at Lincoln Center cost close to $100.

After being ejected from a very long security line to enter the theater, and redirected to stand in an even longer line to the coat check, I moved my camera from  my large bag into my small purse and found another entrance to the auditorium. This line’s “security” guard did not see or feel a camera, so I was allowed in. That let me know how effective the “security” guards would be at detecting a weapon or any genuine threat: not at all. Lincoln Center’s “security” did not make me feel “secure” – quite the opposite – but it did make me feel harassed.

Why does Lincoln Center treat cameras its greatest threat to “security”? Does the organization believe that photographing its productions is “stealing”? Let me remind you that anyone who wants to copy images of Lincoln Center’s copyrighted material, is physically capable of doing so. Photos of Lincoln Center and its productions circulate in Lincoln Center’s advertising, in print and on the internet. Lincoln Center has Copyright law to protect them against such illegal image-copying. Copyright law also applies to any unauthorized photos taken by audience members. Lincoln Center may ban taking photographs in its auditoria without confiscating cameras themselves. Galleries and other performance spaces do this: they have signs that say NO PHOTOGRAPHS. Banning cameras in the theater does absolutely nothing to “protect” anyone. It does however abuse legitimate theater patrons, the ones who bought expensive tickets expecting a civilized experience. Furthermore, banning citizen cameras makes it impossible for citizens to document real danger, thereby lessening everyone’s real security.

People dress up to go to Lincoln Center. They pay hundreds of dollars. They believe it’s important to support the arts. In return, Lincoln Center treats its patrons like criminals, and exploits their fears of terrorism to enforce a misguided, dangerous, and invasive no-camera policy.

Lincoln Center should abandon its dangerous and harassing “security” policies and return to respecting its patrons.

Sincerely,

–Nina Paley
Art Lover

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